• 2 Posts
  • 19 Comments
Joined 2 years ago
cake
Cake day: December 16th, 2023

help-circle














  • spujb@lemmy.cafeOPtoPolitical Memes@lemmy.worldultraracism is normal again
    link
    fedilink
    English
    arrow-up
    12
    arrow-down
    7
    ·
    edit-2
    2 days ago

    You miss the crux of this despite quoting it yourself

    The MDACC is publicly funded. They take money from our taxes.

    Why would a “non-profit” be so concerned with keeping medical research data private? Unless they, perhaps, are planning to sell to a for-profit pharmaceutical company. This isn’t my analysis, it’s truth; this is how it works.

    The argument you are laying out is the “national competitive edge”—ignoring the harm that this exact strategy has already caused. Here are some real events that represent a recurring pattern:

    • Covid mRNA research was funded in part by public grants; despite this, research was not shared as a public good leaving huge swaths of the Global South without timely access
    • The AIDS crisis was worse and decades longer in Asia and Africa than in the US, even while treatment existed, due to the privatization of medical data and the resulting monopoly abuse of treatment pricing
    • In 2025, similar patterns are playing out with cancer research, like from MDACC here. Except this time, the profiteering is done of the face of actual US citizens; the ones who paid for the research. In the US, novel cancer treatments can cost hundreds of thousands of dollars, meaning that significant percentiles of sick taxpayers forgo treatment because the taxpayer research was sold to a private institution.

    It is from these examples I feel it’s easy to conclude that publicly funded healthcare research should not be a trade secret. Any attempt to undermine that structure of abusing literally life-saving information for wealth sequestration gets a couple of cool points in my book.